For most people, turning 18 is a chance to buy a pint in the pub and vote in the next election. For me, it’s meant monumental change. All paediatric services end when you legally become an adult,  so I’ve had to say goodbye to consultants who have known and cared for me all my life, and I need to navigate new systems for almost every part of my medical care.  This ranges from where different medication comes from, to which hospital I attend for different clinics, to the type of ventilator I use.  It has also impacted the services my sisters receive as they had to say goodbye to their sibling support worker at Julia’s House Hospice.  Every week in January it felt like we had to say goodbye to someone else.  But everyone I’ve met in adult services has been kind and competent, and I know I’m in good hands.

I am also being ‘restored’.  Sadly this is not a medical term for what is possible now I’m an adult, but a legal one.  Over two separate appointments with a clinical psychologist I had a capacity assessment and have been found to have capacity to make decisions about my affairs.  This too involves lots of change and a whole heap of responsibility.  I’m ready for it, but I’m also realising that being an adult is not as exciting as children think it is!

Turning 18 was an opportunity for a celebration not to be missed, and last week the notorious Gentlemen’s Club went on tour.  Of course in true Gentlemen’s Club style a pool contest was a must, sharing wise words and beer while getting competitive, a superb way to mark this milestone in my life.

Looking towards the future and immensely grateful for all who have helped me get this far, I strive for what lies ahead knowing Jesus will carry me on.