On the Campaign Trail

Being a campaigner is fun and hard work in equal measure.  So far this week, I have co-presented at a Communication Matters conference in Leeds, been to a reception at the House of Lords and written this blog post on the train – and it’s only Tuesday!

As the youngest delegate at the conference, it was nerve-wracking presenting to about 40 professionals, parents and AAC (Augmentative and Alternative Communication) users; but when one of the audience says it is the best presentation, it makes the journey worthwhile.

When I started to spell everything I wanted to say, I never imagined that I would give a speech at the House of Lords.  But, thanks to the Diana Award, that is exactly what I have just done!  It was good to meet Penny Mordaunt, Minister of State for Disabled People, and make new connections for my campaign; and once again by inspired by the young people who are recognised by the Diana Award.

You can read my speech here:


I received the Legacy Award in recognition of my Teach Us Too campaign for all children to be taught to read and write regardless of their label.

It was an immense honour to receive this award remembering Princess Diana, who so often went out of her way to show solidarity with those society would rather forget about.

Her legacy award has given me a stronger platform on which I am a voice for the voiceless.  My dream is a special education system where academic competence is assumed, rather than assumptions about academic ability based on physical disability.  Unfortunately, current education policy is tipping the other way, with proposals from the Rochford Review that schools will no longer need to report to government on children labelled with Profound and Multiple Learning Difficulties (as I was).  This is against a backdrop where special schools are increasingly opting for non-subject specific learning, ie literacy teaching is no longer required.  This lack of accountability signals that the education of children like me is of very little importance.  Imagine Ofsted was abolished in mainstream education, because no-one really cared what children were taught in schools.  Yet this is what is happening to children like me in education.

If my mother hadn’t removed me from special school for a few hours a day to teach me to read and write I would not be able to write this for you today.  For a non-verbal child, learning to read and write is not just a life skill.  It unlocks our voice.  It gives us life in all its fullness.  I am not unique.  There are more children like me in special school who need an education system that believes they are worth teaching too.  Then my story of learning to write and communicate will not be so unique either.

I don’t have much time left, so I am asking you to get behind my campaign and use your influence to ensure there is accountability and aspiration for children who are often marginalised and judged.

My body is very weak, but my desire to make a difference for children like me is very strong.

With Diana’s legacy I am building my own.


7 thoughts on “On the Campaign Trail

  1. How inspiring, just so refreshing to hear from this amazing person !!! so very special, it would be nice to hear some more of your speeches.! All best wishes Barbara Wilkins.

    Sent from Mail for Windows 10

    Liked by 1 person

  2. Happy soggy Friday from Argyll!
    I just caught your “Thank-you” s on the Chris Evan’s Show on Radio Two & click-ed onto your blog. Brilliant! Stick at it.
    Simon R Dunoon

    Liked by 1 person

  3. Greetings from “across the pond” in America! I first learned about your advocacy work from a friend of mine (Ruth Hake), who is also one of your mother’s friends from uni. Last year, I shared your piece in the Guardian via social media, and today, shared the Times feature on you and your family.

    I’m inspired by your sheer determination to use your gift with words to advocate for other children in similar circumstances! May God continue to bless your efforts. I pray that the leaders you have contacted have “ears to hear” your important message, and that education be reformed to honor the dignity and intellectual potential of every student.

    Finally, as someone who teaches literature to high school students (and previously to university students), I especially enjoyed your poetry page. Thank you for sharing these poems with us, via your blog. I want to encourage you in this endeavor as well: please do keep writing poems as you are inspired!

    Kind regards,
    ~ Leslie Dovale


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