Thank you

Overwhelmed by the beautiful comments I have received, I want to thank you for getting my message out – that children like me need to be taught to read and write.

Please continue to share my petition and make a difference to children still locked in and not being taught.

#TeachUsToo

Capture of blog

 

 

Letter to the Minister for Education

This is the letter I wrote to the Minister for Education to ask her to reform the special education system to teach children like me to read and write.

Dear Minister,

My name is Jonathan Bryan and I am 10 years old. Until last year I was unable to communicate, as I am in a wheelchair with Cerebral Palsy and my voice does not work.  Learning to spell, using only my eyes, has totally transformed my life, but it is only possible because my mother taught me to read and write.  What brings me incredible sorrow is watching my non-verbal friends in wheelchairs miss out on the fullness of life because no-one believes that they are worth teaching literacy to, and waiting locked in for someone to give them a chance to have a voice.

In my experience, non-verbal children like me can’t be described as having Profound and Multiple Learning Difficulties (PMLD) when they have never been taught. At the age of 4, I entered the special education system yoked with the label PMLD despite no-one having taught me; or having found a way for me to communicate. I believe children like me should be reclassified as having Profound and Multiple Access to Learning Difficulties.  Special needs teachers must believe in the potential of their pupils, take the time to find out how the different children will access literacy, and then teach them.  Disabled children with communication issues are not being taught in special schools.  They are being babysat!

If literacy was taught to children in special schools more children would be unlocked like me.  My dream is that every non-verbal child is taught to read and write.  Underestimating special needs children is robbing them of their right to education and communication.  Until this is seen as the abuse it is, nothing will change.  Reforming the special needs curriculum must be a priority.

Yours sincerely,

Jonathan Bryan

Giving Education to Special Children

Learning to spell has totally transformed my life, but it is only possible because my mother taught me to read and write.  What brings me incredible sorrow is watching my non-verbal friends in wheelchairs miss out on the fullness of life because no-one believes that they are worth teaching literacy to.  Seeing them sit with staring eyes makes me yearn to help them, I have written this poem describing what it is like for them.  I’m in the unique position of knowing what this feels like having been in the special school system for five years prior to being able to spell.

 

Song of Silence

Numbness making sensory dead!
Inhibiting freedom fearing change,
Sanity seeping sadly down,
Shutters closing, everyday night.

Ceasing hope holding shame aloft,
Kept like wounded trapped birds caged inside,
Why should silence drown their spirit?
Who can free their souls aching sorrow?

© Jonathan Bryan

My dream is that every non-verbal child is taught to read and write.  Underestimating special needs children is robbing them of their right to education and communication.  Until this is seen as the abuse it is, nothing will change.  Reforming the special needs curriculum must be a priority.

 

500 Words

I am disappointed that my story for the BBC Radio 2 500 Words story writing competition failed to make the long list. However, this means my story can now be shared with you. It is based on my time in Jesus’ garden, Noah is my friend who died when I was living in Lechlade.
You can read my story here.

Jonathan’s first blog

Jonathan with spelling board

Hello! Thank you for reading my blog. I am excited about telling you what my life is like, now I can talk all the time using my eyes to spell on an alphabet board. Will you imagine what it might be like to have waited 9 years to be able to talk?

In the year since beginning to talk my favourite thing to tell people is when I was young and I was ill I went to Jesus’ garden. I experienced so many things in Jesus’ garden I wanted to share some of this in my story for the BBC Radio 2 500 word story competition.

As all of my friends at the church and my school are able to talk I am enjoying asking them questions and talking to them.

When I learnt to spell it meant I could ask for things that I wanted to do. For my tenth birthday I was allowed to choose ten different ways to celebrate, my first choice was to bake every day, which I have a breadmaker for.

Spelling out the difference talking makes is very difficult so I have tried to describe it in poetry:

Song of Voice

As adept fingers point
My silent soul emerges,
Like the dawn blackbird’s song
Suddenly breaking the black.

Music buried in the mind
Sings melodies divine,
Of ancient tales yet untold
Unfurled to men astound.

Whose beauty hears my voice?
What depths saddened my pathway?
Soaring eagles spread wings
I fly to my destiny.

© Jonathan Bryan